Saoirse Foundation, The

Saoirse Foundation, The

2 James Street Tralee V92 T6PH Co. Kerry

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(083)0044444

The Saoirse Foundation was founded by Tony and Mary Heffernan in 2010 after their daughter, Saoirse, was diagnosed with Batten Disease (Neuronal Ceroid Lipofuscinoses – NCL) – a rare and fatal neurological condition. Tony and Mary were given no information, they had no idea what

Children's Charity offering support to families of children with a rare disease and life limiting condition.
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Saoirse Foundation, The

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